The journey of late diagnosis of autism from an autoethnographic, neuroqueer, affective and performative perspective

Autores/as

  • Tània Codina UOC (Universitat Oberta de Catalunya)

DOI:

https://doi.org/10.1344/jnmr.v8.43459

Palabras clave:

Autoetnografía; performance; neuroqueer; autismo; Teoría de los Afectos

Resumen

En este artículo presento mi recorrido del diagnóstico tardío del autismo desde la autoetnografía con la video performance, los afectos y el concepto y práctica del “neuroqueering”. A partir de los Nuevos Materialismos Performativos, el paradigma de la neurodiversidad y los Critical Autism Studies, trato de responder a las narrativas culturales creadas por figuras autoritarias no autistas, generar un punto de vista diferente dentro de los Critical Autism Studies al correlacionar la experiencia autista con los afectos, y dar un paso adelante sobre cómo la experiencia autista es investigada, escrita y hablada culturalmente.

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Biografía del autor/a

Tània Codina, UOC (Universitat Oberta de Catalunya)

The author, who graduated in Fine Arts from the University of Barcelona with a specialization in painting, continued her studies by pursuing a Master’s degree in Secondary Teacher Training and a Master’s degree in Visual Arts and Education. It was during the latter that she received her autism diagnosis, which sparked her interest in research topics linking autism with visual culture or Affect Theory. Currently, she works as a high school teacher of Visual and Plastic Arts and is pursuing a second degree in psychology to further her studies.

Citas

Adams, Tony., Ellis, Carolyn & Holman Jones, Stacy. (2017). Autoethnography. The International Encyclopedia of Communication Research Methods. https://doi.org/10.1002/9781118901731.iecrm0011

Baggs, Amanda (April 3, 2016). In my language [Video]. Youtube. https://www.youtube.com/watch?v=ysdPfRHE7zw&t=4s

Barkved, Kaytlyn. (2019). Neuroqueer imaging: drawing an autistic autoethnography. [student work, The University of British Columbia]. Open collections. https://open.library.ubc.ca/soa/cIRcle/collections/ubctheses/24/items/1.0406250

Baron-Cohen Simon. (2002). The extreme male brain theory of autism. Trends in cognitive sciences, 6(6), 248–254. https://doi.org/10.1016/s1364-6613(02)01904-6

Botha, Monique & Gillespie-Lynch, Kristen. (2022) Come as you are: Examining autistic identity developement and the neurodiversity movement trough an intersectional lens. Human development. 66, 93-112. https://doi.org/10.1159/000524123

Botha, Monique. (2021). Academic, activist or advocate? Angry, entangled and emerging: a critical reflection on autism knowledge production. Frontiers in psychology. 12, 1-12. https://www.frontiersin.org/articles/10.3389/fpsyg.2021.727542/full

Butler, Judith. (2006). Gender Trouble: Feminism and the Subversion of Identity. Routledge

Cano Abadía, Mónica. (2015). Nuevos Materialismos: Hacia feminismos no dualistas. Oxímora Revista Internacional de ética y política. 7, 34 - 47. https://revistes.ub.edu/index.php/oximora/article/view/14416/17829

Gamble, Cristopher, Hannan, Joshua & Nail, Thomas (2019). WHAT IS NEW MATERIALISM?. Angelaki, 24(6), 111–134.doi:10.1080/0969725X.2019.1684704

Deleuze, Gilles & Guattari, Felix. (1987). Thousand Plateaus: Capitalism and Schizophrenia. University of Minnesota Press.

Gandarias Goikoetxea, Itziar. (2014). Tensiones y distensiones en torno a las relaciones de poder en investigaciones feministas con producciones narrativas. Quaderns de psicología. 16 (1). 127-140. https://quadernsdepsicologia.cat/article/view/v16-n1-gandarias/1210-pdf-es

Giraldo, Santiago (2003). ¿Puede hablar el subalterno?. Revista colombiana de antropología. 39, 297-364. http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0486-65252003000100010

Goodley, Dan, Liddiard, Kristy & Runswick-Cole, Katherine. (2018). Feeling disability: theories of affect and critical disability studies. Disability & Society. 33:2, 197-217 https://www.tandfonline.com/doi/pdf/10.1080/09687599.2017.1402752?needAccess=true

Gorton, Kristyn. (2007). Theorizing emotion and affect feminist entanglements. Feminist theory. 8 (3). 333-348. https://doi.org/10.1177/1464700107082369

Gregg, Melissa & Seigworth, Gregory. (2010). The Affect Theory Reader. Duke University Press

Haraway, Donna. (1988) Situated Knowledges. The Science Question in Feminism and the Privilege Partial Perspective. Feminist Studies.14, 3, pp. 575-599.

Haraway, Donna. (2004). “Strong Objectivity”?. The Feminist Standpoint Theory Reader: Intellectual and Political Controversies. 127. https://doi.org/10.1002/9781405165518.wbeoss286

Harding, Sandra. (1992). After the neutrality ideal: science, politics and strong objectivity. Social Research. 59 (3), 567-587.

Lorde, Audre. (1984). “The Master’s Tools Will Never Dismantle the Master’s House.” Sister Outsider: Essays and Speeches. 110-114. https://collectiveliberation.org/wp-content/uploads/2013/01/Lorde_The_Masters_Tools.pdf

Manning, Taylor. (2015). Obstacles, transitions and perspectives: an in-depth look at the spectacle of deviant bodies. [student work, East Tennessee State University]. https://dc.etsu.edu/cgi/viewcontent.cgi?article=3888&context=etd

Méndez, Marzia. (2013). Autoethnography as a research method: Advantages, limitations and criticisms. Colombian Applied Linguistics Journal. 15. 279-287. https://www.researchgate.net/publication/260778406_Autoethnography_as_a_research_method_Advantages_limitations_and_criticisms

Mallipeddi, Nathan & VanDaalen, Rachel. (2021). Intersectionality Within Critical Autism Studies: A Narrative Review. Autism in Adulthood. 00, (00), 1-9. https://www.liebertpub.com/doi/10.1089/aut.2021.0014

Manouilenko, Irina & Bejerot, Susanne. (2015). Sukhareva—Prior to Asperger and Kanner, Nordic Journal of Psychiatry, 69:6, 1761-1764, DOI: 10.3109/08039488.2015.1005022

Milner Victoria, McIntosh Hollie, Colvert Emma & Happé Francesca. (2019). Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD). J Autism Dev Disord, 49(6), 2389-2402. DOI: 10.1007/s10803-019-03906-4

Milton, Damian. (2012). On the ontological status of autism: the double empathy problem. Disability and society. 27 (6), 883-887. https://doi.org/10.1080/09687599.2012.710008

Millán López, Daniel. (2021). Guía autista: Consejos para sobrevivir en el loco mundo de los neurotípicos. Lulu.

Moore, Isobel., Morgan, Gareth., Welham, Alice, & Russell, Ginny. (2022). The intersection of autism and gender in the negotiation of identity: A systematic review and metasynthesis. Feminism & Psychology. 32 (4). https://doi.org/10.1177/09593535221074

Moraña, Mabel. (2012). "POST SCRIPTUM. EL AFECTO EN LA CAJA DE HERRAMIENTAS". In Moraña, Mabel & Sánchez Prado, Ignacio. (2012). El lenguaje de las emociones: Afecto y cultura en América Latina (pp. 313-338). Vervuert Verlagsgesellschaft https://doi.org/10.31819/9783954870530-019

Preciado, Beatriz. (2004). Género y performance. 3 episodios de un cybermanga feminista queer trans… Zehar: revista de Arteleku-ko aldizkaria, 54. 20-27 https://www.caladona.org/grups/uploads/2007/05/Genero_y_performance%5b1%5d.pdf

Revelles-Benavente, Beatriz & González, Ana. (2019). Género en la educación: Pedagogía y responsabilidad feministas en tiempos de crisis políticas. Género, igualdad y justicia social.

Roscigno, Robin. (2021). Critical Autism Studies, Race, Gender, and Education. Oxford Research Encyclopedia of Education. https://doi.org/10.1093/acrefore/9780190264093.013.1604

Sencindiver, Susan. (2017). New Materialism. Oxford Bibliographies. DOI: 10.1093/OBO/9780190221911-0016

Spivak, Gayatri. (1998). ¿Puede hablar el sujeto subalterno?. Orbis tertius, 3 (6), 175-235. https://www.memoria.fahce.unlp.edu.ar/art_revistas/pr.2732/pr.2732.pdf

Sughrua, William. (2019). The Core of Critical Performative Autoethnography. Qualitative Inquiry, 107780041983013–.doi:10.1177/1077800419830132

Sinclair, Jim. (1992). Bridging the gaps: An inside-out view of autism (or, do you know what I don’t know?) High-functioning individuals with autism. New York. Plenum press.

Singer, Judy. (1998). Odd people in: the birth of comunity amongst people on the “autistic spectrum”. A personal exploration of a new social movement based on neurological diversity. A thesis presented to the faculty of Humanities and Social Sciences in partial fulfilment of the requirements for the degree of Bachelor of Arts Social Science (Honours), Faculty of Humanities and Social Science, University of Technology, Sydney, 1998. Submitted September 1998. https://www.academia.edu/27033194/Odd_People_In_The_Birth_of_Community_amongst_people_on_the_Autistic_Spectrum_A_personal_exploration_based_on_neurological_diversity

Shakespeare, Tom. (2006). The social model of disability. The disability studies reader, 2, 197-204. http://thedigitalcommons.org/docs/shakespeare_social-model-of-disability.pdf

Spry, Tamy. (2001). Performing Autoethnography: An Embodied Methodological Praxis. Qualitative Inquiry, 7(6), 706–732.doi:10.1177/107780040100700605

Ticineto, Patricia & Halley, Jean. (2007). The Affective Turn: Theorizing the Social. Duke University Press. https://doi.org/10.2307/j.ctv11316pw

Yergeau, Melanie. (2018). Authoring autism: on rhetoric and neurological queerness. Durham, NC: Duke University Press.

Walker, Nick. (2019). Transformative somatic practices and autistic potentials: an autoethnographic exploration. https://www.proquest.com/openview/e80b77f7f73b23c3cffbf0d332d94cdb/1?pq-origsite=gscholar&cbl=18750&diss=y

Walker, Nick. (2021). Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities. Autonomous Press.

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Publicado

2023-07-31

Número

Vol. 8 (2023): Volumen 8

Sección

Artículos monográficos

Licencia

Derechos de autor 2023 Tània Codina

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