Behind the stigma. A qualitative analysis of the impact on families of individuals with severe mental disorder.
DOI:
https://doi.org/10.1344/its.i4.43388Keywords:
Severe Mental Disorder, associated stigma, family, gender, guiltAbstract
The aim of this article is to investigate the impact of the stigma associated with families of individuals with Severe Mental Disorders. A descriptive exploratory qualitative study was conducted to delve into the opinions, thoughts, and experiences of these families. A total of eight family members participated through interview and focus group techniques. The results show the existence of a stigma still prevalent in today’s society, which significantly affects families who live or have lived with mental illness within their households. Psychosocial consequences such as fear, overprotection, and guilt were identified, particularly among women. The lack of widespread knowledge, the deficiency in professional training, and the difficulties in accessing the mental health system also perpetuate existing stereotypes. The findings suggest the need to implement strategies to reduce stigma, improve access to mental health care, and provide greater family support to create a more understanding and empathetic environment for users and their families. Promoting equality in the care and support of individuals with Severe Mental Disorders is essential, addressing gender differences in the perception of stigma. In this regard, Social Work plays an essential role in advocating for social justice, promoting research, education, and awareness about mental health, with the aim of reducing stigma and enhancing support to families.
References
Aretio, A. (2010). Una mirada social al estigma de la enfermedad mental. Cuadernos de Trabajo Social, 23, 289-300.
Benavides, M. y Gómez-Restrepo, C. (2005). Métodos en investigación cualitativa: triangulación. Revista Colombiana de Psiquiatría, 34(1), 118-124.
Bequis-Lacera, M., Muñoz-Hernández, Y., Duque-Rojas, O., Guzmán-Quintero, A., Numpaque-Molina, A., Rojas-González, A. y Rodríguez-García, C. (2019). Sobrecarga y calidad de vida del cuidador de un paciente con esquizofrenia. Duazary, 16(2), 280-292. https://revistas.unimagdalena.edu.co/index.php/duazary/article/view/2960
Brea, J. y Gil, H. (2016). Estigma y salud mental: una reflexión desde el Trabajo Social. Trabajo Social Hoy, 78, 95-112.
Carbonell, A. & Navarro-Pérez, J J. (2019). The care crisis in Spain: an analysis of the family care situation in mental health from a professional psychosocial perspective. Social Work in Mental Health, 17(6), 743-760. https://doi.org/10.1080/15332985.2019.1668904
Casanova-Rodas, L., Rascón-Gasca, M.L., Alcántara-Chabelas, H. y Soriano-Rodríguez, A. (2014). Apoyo social y funcionalidad familiar en personas con trastorno mental. Salud Mental, 37(5), 443-448.
Cazorla-Palomo, J. y Parra-Ramajo, B. (2017). El cambio en los modelos del trabajo social en salud mental: del modelo rehabilitador al modelo social. Alternativas: Cuadernos de Trabajo Social, 4, 43-54. https://doi.org/10.14198/ALTERN2017.24.03
Chang, C.C., Yen, C.F., Jang, F.L., Su, J.A., & Lin, C.Y. (2017). Comparing affiliate stigma between family caregivers of people with different severe mental illness in Taiwan. The Journal of Nervous and Mental Disease, 205(7), 542-549.
de la Cámara, E. (2022). Ética y psiquiatría. Una dualidad médico-filosófica. Gaceta Internacional de Ciencias Forenses, 43, 5-20.
Denzin, N.K. & Lincoln, Y.S. (Eds.). (2011). The Sage handbook of qualitative research. Sage Publications.
Domínguez-Amorós, M., Batthyány, K., & Scavino, S. (2021). Gender gaps in care work: Evidences from Argentina, Chile, Spain and Uruguay. Social Indicators Research, 154(3), 969-998. https://doi.org/10.1007/s11205-020-02556-9
Durán, M. A. (2018). La riqueza invisible del cuidado. Universitat de València.
Eaton, K., Ohan, J. L., Stritzke, W. G. & Corrigan, P. W. (2016). Failing to meet the good parent ideal: Self-stigma in parents of children with mental health disorders. Journal of Child and Family Studies, 25, 3109-3123. https://doi.org/10.1007/s10826-016-0459-9
Glecia, A. & Li, H. (2023). Mental health and wellbeing in family caregivers of patients with schizophrenia disorder: a literature review. Current Psychology, 1-28. https://doi.org/10.1007/s12144-023-05220-w
Goffman, E. (1963). Stigma. Notes on the Management of Spoiled Identity. Penguin Books.
Gomis, O., Palma, C. y Farriols, N. (2019). Intervención domiciliaria y comunicación familiar en pacientes psicóticos. PsiAra, 2019, 1-7.
Khatooni, M. (2023). Stigma in the context of COVID-19 crisis: An evolutionary concept analysis. Professional Case Management, 28(1), 20-32. https://doi.org/10.1097/NCM.0000000000000573
Kuhalainen, J.A. (2018). Propuesta para la atención psicoterapéutica a los familiares de personas afectas de un Trastorno Mental Grave. Norte de Salud Mental, 15(59), 117-119.
Manesh, A.E., Dalvandi, A. & Zoladl, M. (2023). The experience of stigma in family caregivers of people with schizophrenia spectrum disorders: A meta-synthesis study. Heliyon, 9(3), 1-10. https://doi.org/10.1016/j.heliyon.2023.e14333
Misra, S., Jackson, V.W., Chong, J., Choe, K., Tay, C., Wong, J. & Yang, L.H. (2021). Systematic review of cultural aspects of stigma and mental illness among racial and ethnic minority groups in the United States: Implications for interventions. American Journal of Community Psychology, 68(3-4), 486-512. https://doi.org/10.1002/ajcp.12516
Mora, B.L. (2017). El proceso del estrés del cuidado familiar en esquizofrenia [Tesis Doctoral, Universidad Autónoma de Madrid]. https://repositorio.uam.es/bitstream/handle/10486/680358/mora_castanneda_belvy_leonor.pdf
Mora-Ríos, J., Natera-Rey, G., Bautista-Aguilar, N. y Ortega-Ortega, M. (2013). Estigma público y enfermedad mental. Una aproximación desde la teoría de las representaciones sociales. En F. Flores-Palacios, Representaciones sociales y contexto de investigación con perspectiva de género (pp. 45-80). ISSUP.
Navarro-Pérez, J.J. & Carbonell, A. (2018). Family burden, social support, and community health in caregivers of people with serious mental disorder. Revista da Escola de Enfermagem da USP, 52, 1-7. https://doi.org/10.1590/s1980-220x2017029403351
Organización Mundial de la Salud (2022). Trastornos mentales. Datos y cifras. https://www.who.int/es/news-room/fact-sheets/detail/mental-disorders
Pérez, D. (2016). Perceived discrimination, internalized stigma and well-being in people with mental illness [Tesis Doctoral, Universidad Nacional de Educación a Distancia]. http://e-spacio.uned.es/fez/view/tesisuned:Psicologia-Daperez
Ran, M. S., Hall, B. J., Su, T. T., Prawira, B., Breth-Petersen, M., Li, X. H. & Zhang, T. M. (2021). Stigma of mental illness and cultural factors in Pacific Rim region: A systematic review. BMC Psychiatry, 21, 1-16. https://doi.org/10.1186/s12888-020-02991-5
Richard-Lepouriel, H., Aubry, J.M. & Favre, S. (2021). Is coping with stigma by association role-specific for different family members? A qualitative study with bipolar disorder patients’ relatives. Community Mental Health Journal, 58, 179–192. https://doi.org/10.1007/s10597-021-00809-6
Roselló, P. (2019). Efectos del autoestigma en familiares de personas con un Trastorno Mental Grave: Culpa, vergüenza y autocompasión [Trabajo Final de Máster, Universidad Pontificia Comillas]. https://repositorio.comillas.edu/xmlui/bitstream/handle/11531/53776/TFM001448.pdf
Saavedra, J. y Murvartian, L. (2021). Estigma público en salud mental en la universidad. Universitas Psychologica, 20, 1-15. https://doi.org/10.11144/Javeriana.upsy20.epsm
Shi, Y., Shao, Y., Li, H., Wang, S., Ying, J., Zhang, M., Li, Y., Xing, Z. & Sun, J. (2019). Correlates of affiliate stigma among family caregivers of people with mental illness: A systematic review and meta-analysis. Journal of Psychiatric and Mental Health Nursing, 26(1-2), 49-61. https://doi.org/10.1111/jpm.12505
Torres, M. (2021). Ignorancia y complejidad: La sociología de la enfermedad mental. Acciones e Investigaciones Sociales, 42, 43-75. https://doi.org/10.26754/ojs_ais/ais.2021426228
Vigo, D., Jones, L., Atun, R. & Thornicroft, G. (2022). The true global disease burden of mental illness: still elusive. The Lancet Psychiatry, 9(2), 98-100. https://doi.org/10.1016/S2215-0366(22)00002-5
Vivar, C. G., McQueen, A., Whyte, D. A. y Canga, N. (2013). Primeros pasos en la Investigación Cualitativa: Desarrollo de una propuesta de investigación. Index de Enfermería, 22(4), 222-227. https://doi.org/10.4321/S1132-12962013000300007
Yin, M., Li, Z. & Zhou, C. (2020). Experience of stigma among family members of people with severe mental illness: A qualitative systematic review. International Journal of Mental Health Nursing, 29(2), 141-160. https://doi.org/10.1111/inm.12668
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