Del consentiment informat a la presa de decisions compartides i la urgència de la seva implementació en el context brasiler

Autors/ores

DOI:

https://doi.org/10.1344/rbd2023.59.40869

Paraules clau:

atenció de salut, bioètica, pacient, presa de decisions compartides, consentiment informat

Resum

L'actual article exposa una visió general de la Presa de Decisions Compartides (PDC), cada vegada més considerada com la millor manera d'involucrar els pacients en el procés de decisió sobre la seva cura sanitària. No obstant això, malgrat el reconeixement internacional ampli, la PDC encara no està àmpliament implementada en la pràctica clínica brasilera, essent el consentiment informat el model de presa de decisions més comunament adoptat pels professionals de la salut. Així, aquest treball, després de clarificar les definicions al voltant de la PDC, presenta instruments per a la seva aplicació i les raons per les quals aquesta nova forma de prendre decisions ha de ser preferible al consentiment informat.

Biografia de l'autor/a

Kalline Carvalho Gonçalves Eler, Universidade Federal de Juiz de Fora (UFJF)

Professora de Direito da Universidade Federal de Juiz de Fora (UFJF). Doutora em Bioética pela Universidade de Brasília (UnB). Diretora do Instituto Brasileiro de Direito do Paciente (IBDPAC).

Referències

Albuquerque, A. (2020). Manual de Direito do Paciente. Editora CEI.

Annas, G. J. (2004). The rights of patients. New York University Press.

Beauchamp, T. L., & Childress, J. F. (2012). Principles of Biomedical Ethics (7th ed.). Oxford: University Press.

Bomhof-Roordink, H., Gärtner, F. R., Stiggelbout, A. M., & Pieterse, A. H. (2019). Key components of shared decision making models: A systematic review. BMJ Open, 9(12). https://doi.org/10.1136/bmjopen-2019-031763.

Coulter, A. and, & Collins, A. (2011). Making Shared Decision-Making a Reality: no decision about me, without me. In The Kings Fund. http://www.kingsfund.org.uk/publications/nhs_decisionmaking.html

Elwyn, G., Durand, M. A., Song, J., Aarts, J., Barr, P. J., Berger, Z., Cochran, N., Frosch, D., Galasiski, D., Gulbrandsen, P., Han, P. K. J., Härter, M., Kinnersley, P., Lloyd, A., Mishra, M., Perestelo-Perez, L., Scholl, I., Tomori, K., Trevena, L., … Van Der Weijden, T. (2017). A three-talk model for shared decision making: Multistage consultation process. BMJ (Online), 359, 1–7. https://doi.org/10.1136/bmj.j4891.

Elwyn, G., & Edwards, A. (2009). Shared Decision-Making in Health Care: Achieving evidence-based patient choice. Oxford University Press.

Gabe, J., Olumide, G., & Bury, M. (2004). ‘It takes three to tango’: a framework for understanding patient partnership in pediatric clinics. Social Science & Medicine, 59(5), 1071–1079. https://doi.org/10.1016/j.socscimed.2003.09.035.

Garrido, N. P., Correa, F. A., Lozano, E. B., Calero, J. B., & Moreno, M. O. (2019). Physicians’ awareness and assessment of shared decision making in oncology practice. Revista Espanola de Salud Publica, 93, 1–12.

Greene, J., & Hibbard, udith H. (2012). Why does patient activation matter? An examination of the relationships between patient activation and health-related outcomes. J Gen Intern Med, 27(5), 520–526.

Hack, T. F., Degner, L. F., Watson, P., & Sinha, L. (2006). Do patients benefit from participating in medical decision making? Longitudinal follow-up of women with breast cancer. Psychooncology., 15(1), 9–19.

Joosten, E. A. G., DeFuentes-Merillas, L., De Weert, G. H., Sensky, T., Van Der Staak, C. P. F., & De Jong, C. A. J. (2008). Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychotherapy and Psychosomatics, 77(4), 219–226. https://doi.org/10.1159/000126073.

Kiesler, D. J., & Auerbach, S. M. (2006). Optimal matches of patient preferences for information, decision-making and interpersonal behavior: evidence, models and interventions. Patient Educ Couns, 3(61), 319–341.

Kirkscey, R. (2018). Bioethical communication: shared decision-making and relational empathy. Journal of Communication in Healthcare, 11(3), 164–174. https://doi.org/10.1080/17538068.2018.1447757.

Légaré, F., & Thompson-Leduc, P. (2014). Twelve myths about shared decision making. Patient Education and Counseling, 96(3), 281–286. https://doi.org/10.1016/j.pec.2014.06.014.

Légaré, F., & Witteman, H. O. (2013). Shared decision making: Examining key elements and barriers to adoption into routine clinical practice. Health Affairs, 32(2), 276–284. https://doi.org/10.1377/hlthaff.2012.1078.

NICE. (2015). The Safe and Effective Use of Medicines to Enable the Best Possible Outcomes. https://www.ncbi.nlm.nih.gov/books/NBK305021/.

Pomey, M.-P., Denis, J.-L., & Dumez, V. (2019). Patient Engagement. How Patient-provider Partnerships transform Healthcare Organizations. http://link.springer.com/10.1007/978-3-030-14101-1.

Shay, L. A., & Lafata, J. E. (2015). Where is the evidence? A systematic review of shared decision making and patient outcomes. Journal of the Society for Medical Decision Making, 18(9), 1199–1216. https://doi.org/10.1177/0272989X14551638.

Stacey, D., Légaré, F., Lewis, K., Barry, M. J., Bennett, C. L., Eden, K. B., Holmes-Rovner, M., Llewellyn-Thomas, H., Lyddiatt, A., Thomson, R., & Trevena, L. (2017). Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev., 12(4).

Stiggelbout, A. M., Pieterse, A. H., & De Haes, J. C. J. M. (2015). Shared decision making: Concepts, evidence, and practice. Patient Education and Counseling, 98(10), 1172–1179. https://doi.org/10.1016/j.pec.2015.06.022.

Veroff, D., Marr, A., & Wennberg, D. E. (2013). Enhanced Support For Shared Decision Making Reduced Costs Of Care For Patients With Preference-Sensitive Conditions. Health Aff (Millwood), 32(2), 285–293.

Descàrregues

Publicades

2023-10-18

Com citar

Carvalho Gonçalves Eler, K. (2023). Del consentiment informat a la presa de decisions compartides i la urgència de la seva implementació en el context brasiler. Revista De Bioética Y Derecho, (59), 117–132. https://doi.org/10.1344/rbd2023.59.40869

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